2021: SUBMISSION: Senate Joint Standing Committee on NDIS Inquiry into Independent Assessments
In 2021 the Australian Senate Joint Standing Committee on the National Disability Insurance Scheme (NDIS), conducted an inquiry into Independent Assessments under the NDIS.
I am the former Head of the NDIS Technology Authority.
I provided this submission as I present a somewhat unique perspective across the business case, architecture, co-design, health sector innovation, technology industry and the lived experience of family members with disability.
This is an horrific story. Our beautiful daughter’s story.
Like many people, families and even professionals, together we are deeply traumatised in telling our story. It takes time to tell the story, and then we must rest. But we will never give up.
It serves as a warning to civil society, of government agencies and other organisations planning the use of #AI, #Biometrics, #Blockchain and other #Algorithm based technologies - without the governance and protection of #Ethics and #Codesign - of the additive impact of experimental algorithms on the most vulnerable in society.
RECOMMENDATIONS:
Immediately stop the Independent Assessment action.
Establish an ethics framework within the NDIS legislation.
Establish an ethics committee as part of the NDIS Board governance arrangements.
Establish independent oversight by the Joint Standing Committee on the NDIS and the Australian Human Rights Commission, of any activities involving biometrics, algorithms or blockchain in services for people with disability.
Initiate a complete re-engineering, re-architecting and re-build of NDIS systems: and for this re-engineering exercise to be determined through co-design.
Establish an ongoing in-house co-design capability, resourced by staff with disability and advocacy sector experience.
My submission can be seen on the Senate Committee website here.
A PDF copy of the submission can be read here.
